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Ryan’s Dream - The Miracle of Hearing. |
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Le rêve de Ryan - le miracle de l'audition. |
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Published in Woman’s World Magazine |
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The wonderful people that made it
happen, |
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Cost for
Cochlear Implant in $43,100.00 |
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The Sound of Silence by:Simon and Garfunkel
Lyrics Hello darkness, my
old friend, I've come to talk with you again, Because a vision softly
creeping, Left its seeds while I was sleeping, And the vision that was
planted in my brain, Still remains Within the sound of
silence. When my eyes were
stabbed by the flash of a neon light And touched the sound
of silence. Disturb the sound of
silence.
But my words like
silent raindrops fell, And echoed In the wells of silence.
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Ryan had his Cochlear Implant
surgery on |
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Ryan will have his Cochlear Implant
activated on |
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News Paper Articles |
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Chomedey News – Duchoeny willing to fight RAMQ all the way to the Supreme
Court |
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Live Interviews |
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Chomedey News – |
Interview
on TVA (French) Sept.
26, 2003 |
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Interview
on Global TV Sept.
26, 2003 |
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Interview
on TVA (French) |
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TVA Un an plus tard-One Year
Later |
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Interview
on TQS (French) |
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Interview on Global TV |
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Canadian Jewish News – |
TVA (French) Report 1
Nov. 13 |
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TVA (French) Report 2
Nov. 13 |
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Interview
on TQS (French) |
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Interview on CTV Pulse News |
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Interview
on CTV Pulse News |
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Interview
on TQS (French) |
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Interview
on TVA (French) |
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Chomedey News – |
Interview on
TQS (French)
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Interview
on TVA (French) |
Live Interviews (Continued) |
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Interview on CTV Pulse News
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Inter.
Global TV Jan.
12, 2001 |
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Interview on TQS (French) |
Inter.
TQS (French) Jan.
11, 2001 |
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Inter. CTV Pulse News Jan. 23, 2001 |
Inter.
CTV Pulse News Nov.
21, 2000 |
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Canadian Jewish News – |
French News Paper Articles |
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Journal le Métro – Nov. 15, 2001 |
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Deaf
ears? Hearing challenged lad’s dad questions Quebec’s refusal to fund
Cochlear Implant |
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Le Devoir – Jan. 10, 2001 |
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Le Journal de Montréal –
Jan. 10, 2001 |
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Story about dealing with a Special Needs child. |
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Top-level
attachés to the Quebec Health Minister Are negligent
to discriminatory practices of RAMQ and Hôpital Hôtel-Dieu de Québec |
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Parents go to media, possibly to court in their attempt
to force R.A.M.Q. (Régie d’assurance maladie du
Québec (Quebec Public Health Care System)) to pay for Cochlear Implant. |
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Montreal January 27,
2001 One person called it a miracle of biblical proportions. Thanks to a device called a Cochlear Implant, 9-year-old
deaf Ryan Duchoeny may one day be able to hear. There's a difference between miracles in the Bible and
those performed by doctors. Ryan's miracle requires funding by R.A.M.Q. and the
Quebec Health Ministry. R.A.M.Q. and the Quebec Health Ministry are something the
Duchoeny family has learned to distrust. R.A.M.Q. and the Quebec Health Ministry refuse to cover
the costs of the surgery for their son, Ryan. This story will play out in an American operating room, a
Quebec courtroom, at the Quebec Human Rights Commission and in any media
outlet that is willing to listen. One debate over Cochlear Implants, that is slowly
unfolding through the Duchoeny family comes down to measuring the results of
a controversial procedure against how much it costs. A Cochlear Implant will cost about $40,000 U.S. This is
if R.A.M.Q. refuses to pay the $30,000.00 (Canadian) that it will cost for
the procedure in Canada. Quebec Medicare now covers the procedure for a limited
number of children and adults that are deemed “appropriate”. A
recent study by John Hopkins University Hospital estimates that young
children who receive the implant can save "as much as $50,000 annually" or "as much
as one million dollars” over the lifetime of the individual. At a meeting on Monday October 23, 2000 Monsieur Maxime
Barakat and Madame Sylvie Tremblay (top-level attachés to the Quebec Health
Minister, Madame Pauline Marois) vowed that they would look into and try to
resolve the discriminatory practices of Quebec Medicare. Results were promised for Friday November 3, 2000 but
none were delivered. Deaf children are being denied the chance of hearing. The
health ministry refuses to give older signing children Cochlear Implants.
They claim that due to the fact that these children communicate by sign
language they are not suitable candidates for Cochlear Implant. Frank Duchoeny a resident of Chomedey, Laval, and father
of Ryan who is profoundly
deaf, says that… "This surgery should be available to
people who want it". "R.A.M.Q. and the Quebec Government are making
this decision for me". They say that we don’t meet the criteria. The
truth is that this is an issue of cost and discrimination. They claim that
due to the fact that Ryan is 8 ½ and communicates by sign language he is not
a good candidate. NYU Medical Center in New York feels the opposite. Frank
Duchoeny has brought charges of discrimination against Hôpital Hôtel Dieu and
R.A.M.Q. “The Quebec Human Rights Commission has stated that they are not
allowed to make a distinction between children who sign and children who do
not.” Some people believe parents should wait for a Cochlear
Implant until a child is old enough to decide whether he or she wants to be
part of the "hearing community''. In this case Ryan Duchoeny is asking
to be implanted. He realizes the importance of hearing. The doctors in
Quebec, in the meantime are telling us that children should be implanted by
their first birthday. A survey of Cochlear Implant literature
clearly indicates that all children receive some level of benefit regardless
of age of implantation and / or their mode of communication. Moreover
the decision about whether any given benefit is "sufficient"
to merit the implantation should rest primarily with the patient and / or the
parents. This decision should belong to the parents and not
R.A.M.Q. the Quebec health Ministry and the doctors. "I want Ryan to hear me say, 'I love you' ".
"I want Ryan to be able to order his own food in a restaurant and to be
able to talk to his grandparents." Ryan was born deaf. He suffers from "nerve
deafness," or sensorineural hearing loss in which the tiny hair cells
that line the cochlea have been damaged. Ryan’s parents have no hearing problems and have found no
instances of hearing loss in their family trees. The Cochlear Implant is an electric prosthesis. When
surgically placed in the inner ear, it performs the function of the cochlea.
That's the part of the inner ear that decodes sound waves into electrical
pulses. The implant enables deaf people to perceive receptive
sounds. Most children who receive the implant learn to speak. The Duchoeny family must raise $36,000 U.S. to pay for
Ryan’s implant while at the same time putting public pressure on R.A.M.Q. A hearing aid amplifies sound, while a Cochlear Implant
perceives sound and translates it into electrical pulses. "The surgery
is literally a miracle of biblical proportions''. |
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For further information please contact Frank Duchoeny at frank@duchoeny.com |
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